Profound Intellectual and Multiple Disabilities: Nursing Complex Needs / Edition 1

by Jillian Pawlyn, Steven Carnaby

Overview

PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES

Nursing Complex Needs

Children and adults with profound and multiple learning disabilities (PMLD) are among the most marginalised people in society. They have some of the highest support needs and are most reliant on services. This accessible and practical text presents and promotes current best practice regarding interventions to meet the complex health needs of a person with profound and multiple learning disabilities.

Divided into two sections, Profound Intellectual and Multiple Disabilities first looks at assessing complex needs, exploring topics such as communication, maintaining health, and quality of life. Part two then discusses meeting complex needs, looking at topics such as mental health problems, epilepsy, vision impairment, aural health, respiratory health, nutrition, and dysphagia.

KEY FEATURES:

• Examines current theory and practice in supporting people with profound and multiple learning disabilities and/or complex needs
• Identifies the key knowledge and skills required by learning disability nurses and other health care professionals
• Provides evidence-based best-practice guidelines about caring for people with PMLD
• Offers insights into parent carer and professional carer experiences

Product Details

ISBN-13:	9781405151702
Publisher:	Wiley
Publication date:	12/22/2008
Pages:	376
Product dimensions:	6.70(w) x 9.60(h) x 0.90(d)

About the Author

ABOUT THE EDITORS:

JILLIAN PAWLYN is Lecturer/Practitioner at Ridgeway Partnership NHS Trust and Oxford Brookes University, Oxford.

STEVEN CARNABY is Consultant Lead Clinical Psychologist at Westminster Learning Disability Partnership, London.

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Table of Contents

Contributors vii

Foreword ix

Acknowledgements xiii

Section 1 Assessing Complex Needs

Chapter 1 Introduction 03
Jillian Pawlyn and Steven Carnaby

Chapter 2 Quality of Life: People with Profound Intellectual and Multiple Disabilities 15
Katja Petry and Bea Maes

Chapter 3 Supporting a Person with Profound Intellectual and Multiple Disabilities to Maintain Their Health: A Parent Carer and Support Team Experience 37
Jan Roast, Katie Hickson and Sarah King

Chapter 4 Making Sense of Communication 46
Karen Bunning

Chapter 5 Promoting the Emotional Well-being of People with Profound and Multiple Intellectual Disabilities: A Holistic Approach through Intensive Interaction 62
Melanie Nind

Chapter 6 Achieving and Maintaining Health 78
Jillian Pawlyn

Chapter 7 Clinical Assessment of People with Profound Intellectual and Multiple Disabilities 98
Steven Carnaby

Section 2 Meeting Complex Needs

Chapter 8 Mental Health Problems and People with Profound Intellectual and Multiple Disabilities 113
Steven Carnaby

Chapter 9 Epilepsy: Implications for People with Profound Intellectual and Multiple Disabilities 134
Mary Codling and Nicky MacDonald

Chapter 10 ‘Sight Is Might’: Vision and Vision Impairment in People with Profound Intellectual and Multiple Disabilities 147
Gill Levy

Chapter 11 Hearing and Aural Health 168
Laura Waite

Chapter 12 Respiratory Health of People with Profound Intellectual and Multiple Disabilities 186
Colin Wallis

Chapter 13 Dental Care and Oral Health 202
Pauline Watt-Smith

Chapter 14 Dysphagia and People with Profound Intellectual and Multiple Disabilities 236
Hannah Crawford

Chapter 15 Nutrition, Hydration and Weight 259
Siân Burton, Susan Cox and Sue M. Sandham

Chapter 16 Continence 292
Jillian Pawlyn and Shirley Budd

Chapter 17 Mobility, Posture and Comfort 328
Sarah Hill and Liz Goldsmith

Chapter 18 Profound Intellectual and Multiple Disabilities: Meeting Complex Needs through Complex Means 348
Steven Carnaby and Jillian Pawlyn

Index 355

What People are Saying About This

From the Publisher

"The book is essential reading for learning disability nurses at any level.... A book that is crammed with both practical information and stimulating theory." (Learning Disability Practice, April 2009)

"An accessible text examining best practice for assessing and meeting the needs of people with profound and multiple learning disabilities." (Viewpoint, November 2008)

Editorial Reviews

Reviewer: Kathleen M. Woodruff, DNP, RN, ANP-BC(USC School of Social Work)
Description: This comprehensive book provides the information necessary to help healthcare workers effectively care for patients with profound intellectual and multiple disabilities. It focuses on recent advances in the care of these patients, but also clearly identifies the barriers that continue to exist.
Purpose: The purpose is to encourage all healthcare providers caring for patients with profound intellectual and multiple disabilities to strive for good health for their patients, both physical and mental. The authors focus on the concepts of engagement and the holistic approach for addressing the needs of these patients and their care providers. They do an excellent job of meeting these objectives.
Audience: This is a valuable resource for all healthcare practitioners that provide care for patients with profound intellectual and multiple disabilities. This book will be an extremely useful resource for novice to the experienced practitioner. The authors have extensive experience in this area of practice.
Features: This very comprehensive book covers not only the assessment of complex needs but also the delivery of care with complex needs. The references at the end of each chapter are up to date. The index is user friendly. Each chapter is specifically focused on one issue and is easy to follow with clear subheadings. The book includes many excellent pictures, diagrams and tables.
Assessment: This excellent book provides much needed information that will improve care for patients with profound intellectual and multiple disabilities. This is a wonderful book that will be a valuable addition to a practitioner's library. The focus on engagement and holistic care provides practitioners with a foundation for helping patients and their families in maximizing the quality of life.

Doody's Review Service

Reviewer:Kathleen M. Woodruff, RN, MS, CRNP(Johns Hopkins University School of Nursing)
Description:This comprehensive book provides the information necessary to help healthcare workers effectively care for patients with profound intellectual and multiple disabilities. It focuses on recent advances in the care of these patients, but also clearly identifies the barriers that continue to exist.
Purpose:The purpose is to encourage all healthcare providers caring for patients with profound intellectual and multiple disabilities to strive for good health for their patients, both physical and mental. The authors focus on the concepts of engagement and the holistic approach for addressing the needs of these patients and their care providers. They do an excellent job of meeting these objectives.
Audience:This is a valuable resource for all healthcare practitioners that provide care for patients with profound intellectual and multiple disabilities. This book will be an extremely useful resource for novice to the experienced practitioner. The authors have extensive experience in this area of practice.
Features:This very comprehensive book covers not only the assessment of complex needs but also the delivery of care with complex needs. The references at the end of each chapter are up to date. The index is user friendly. Each chapter is specifically focused on one issue and is easy to follow with clear subheadings. The book includes many excellent pictures, diagrams and tables.
Assessment:This excellent book provides much needed information that will improve care for patients with profound intellectual and multiple disabilities. This is a wonderful book that will be a valuable addition to a practitioner's library. The focus on engagement and holistic care provides practitioners with a foundation for helping patients and their families in maximizing the quality of life.

"The book is essential reading for learning disability nurses at any level.... A book that is crammed with both practical information and stimulating theory." (Learning Disability Practice, April 2009)

"An accessible text examining best practice for assessing and meeting the needs of people with profound and multiple learning disabilities." (Viewpoint, November 2008)

From the Publisher