A Comprehensive Guide to Intellectual and Developmental Disabilities / Edition 2

by Michael L. Wehmeyer

Overview

The trusted core disability textbook gets a comprehensive update in this second edition, now thoroughly revised to include all the critical topics today's professionals need to know about as they work with people who have intellectual and developmental disabilities. Brought to you by a new team of world-renowned experts and contributors, this volume fully prepares future educators, social workers, researchers, and clinicians to provide the best services and supports to children and adults across the life span. Tomorrow's professionals will discover what to do and how to do it as they prepare for their important work, and they'll refer to this user-friendly compendium year after year for information, insights, and answers. A cornerstone text for any course focused on intellectual and developmental disabilities—and an essential reference for every in-service professional's library.

THE IDEAL CORE TEXT FOR INTELLECTUAL AND DEVELOPMENTAL DISABILITY COURSES:

• Broad and deep, with thorough, up-to-date information on intervention, education, family roles, health issues, specific disabilities, and much more
• Life span–focused, with topics ranging from genetics and development to issues related to aging
• Multidisciplinary, blending research and personal experiences of more than 70 esteemed authors from diverse fields
• Immediately applicable, presenting both the facts and practical, real-world advice on meeting the individual needs of people with disabilities
• Student friendly, with learning objectives, instructive case stories, stimulating questions for reflection, and key Internet resources

WHAT'S NEW: New co-editors and contributors * New and extensively updated chapters on critical topics, including AAC and technology, autism spectrum disorder, advocacy and self-advocacy, communication challenges, family issues, human development and genetics, legal and ethical considerations, and psychopharmacology

SELECTED TOPICS COVERED: assessment and diagnosis * behavior and mental health * brain plasticity * cerebral palsy * decision making and consent * Down syndrome * early development and intervention * education * employment * epilepsy * fetal alcohol spectrum disorder * fragile X syndrome * gender issues in developmental disabilities * international human rights * nutritional considerations * parenting * physical health * service systems and approaches * transition from school to adult life

Product Details

ISBN-13:	9781598576023
Publisher:	Brookes Publishing
Publication date:	02/01/2017
Edition description:	New
Pages:	784
Product dimensions:	8.70(w) x 11.00(h) x 1.60(d)

About the Author

Michael L. Wehmeyer, Ph.D. is Professor of Special Education; Director, Kansas University Center on Developmental Disabilities; and Senior Scientist, Beach Center on Disability, all at the University of Kansas. He has published more than 25 books and 250 scholarly articles and book chapters on topics related to self-determination, special education, intellectual disability, and eugenics. He is s co-author of the widely used textbook Exceptional Lives: Special Education in Today's Schools, published by Merrill/Prentice Hall, now in its 7th Edition. His most recent book, co-authored with J. David Smith, is Good Blood, Bad Blood: Science, Nature, and the Myth of the Kallikaks, published by the American Association on Intellectual and Developmental Disabilities (AAIDD). Dr. Wehmeyer is Past-President (2010-2011) of the Board of Directors for and a Fellow of AAIDD; a past president of the Council for Exceptional Children's Division on Career Development and Transition (DCDT); a Fellow of the American Psychological Association (APA), Intellectual and Developmental Disabilities Division (Div. 33); a Fellow of the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD); and former Editor-in-Chief of the journal Remedial and Special Education. He is a co-author of the AAIDD Supports Intensity Scale, and the 2010 AAIDD Intellectual Disability Terminology, Classification, and Systems of Supports Manual.

Ivan Brown has worked in, and contributed to, the field of disabilities for the past 25 years. He began his work life as an elementary school teacher for 8 years before taking a position with Community Living Toronto, where he worked as a vocational counselor and community living support worker while completing his graduate studies in counseling psychology (M.Ed.) and special education (Ph.D.). In 1991, he took a position as Senior Research Associate with the Centre for Health Promotion, Department of Public Health Sciences, University of Toronto, where he managed a number of large research projects. Several of these addressed quality of life of children with disabilities, adults with developmental disabilities, seniors, and adolescents. He held appointments during the 1990s as Assistant Professor in the Departments of Occupational Therapy and Public Health Sciences, both at the University of Toronto, and taught both in the graduate health promotion program in the Department of Public Health Sciences and in the School of Early Childhood Education at Ryerson University in Toronto, which has a special focus on young children with special needs. Ivan is manager of the Centre of Excellence for Child Welfare, a national body for research and policy development in child welfare, to which he brings an important disability focus. The Centre is housed within the graduate Faculty of Social Work at the University of Toronto, in which Ivan holds an appointment of Associate Professor. Research in disability has been, and continues to be, a critical part of his ongoing work.

Ivan has a strong history of community involvement in disability, serving on numerous government and community agency committees and boards, participating in research projects, and acting in leadership roles with several professional organizations. In particular, he was a longstanding member of the Board of Directors of the Ontario Association on Developmental Disabilities and served as its Chair for a 2-year period. In 2001, he was awarded this Association's highest honor, the Directors' Award of Excellence. He is a fellow of the International Association for the Scientific Study of Intellectual Disability and is a long-standing member of the American Association on Intellectual and Developmental Disabilities (formerly the American Association on Mental Retardation [AAMR]).

Ivan has contributed substantially to the Canadian and international literature, particularly in the areas of quality of life and intellectual disabilities. He has more than 100 peer-reviewed publications to his credit-in the form of books, book chapters, and journal articles-as well as numerous other articles, editorials, reviews, booklets, scales, and manuals. He has made 112 presentations at academic conferences in the past 10 years, including several keynote speeches. He serves on the review boards of seven academic journals and was co-editor with Maire Percy of the comprehensive text Developmental Disabilities in Ontario, Second Edition (Ontario Association on Developmental Disabilities, 2003). He was the founding editor of the Journal on Developmental Disabilities and still sits as a member of its Chief Editorial Board.

Ivan continues to be personally involved in disability issues, through sharing the lives of many friends with disabilities and through sharing his household with a man who has visual and cognitive impairments. He holds a strong belief that including disability as part of our daily life activities is an enriching experience for us all.

In addition to working at Surrey Place Centre (a Toronto agency providing coordinated service, education, and research in the intellectual disabilities field), Maire Percy is Professor Emeritus of Physiology and Obstetrics &: Gynaecology at the University of Toronto. She holds a bachelor's degree in physiology and biochemistry, a master's degree in medical biophysics, and a doctoral degree in biochemistry, all from the University of Toronto; in addition, she is an Associate of the Royal Conservatory of Music of Toronto (A.R.C.T.). She did postdoctoral training as a Medical Research Council Fellow in immunology at the Agricultural Research Council Institute of Animal Physiology, Babraham, United Kingdom, and in immunology and genetics at the Hospital for Sick Children in Toronto. As National Health Research Scholar (Health Canada), Maire entered the field of intellectual and developmental disabilities after a meeting with Arthur Dalton, then Director of Behavior Research at Surrey Place Centre, who recognized the potential of her multidisciplinary background and creativity for research in intellectual disabilities. In collaboration with Arthur Dalton and Vera Markovic, cytogeneticist at Surrey Place, Maire initiated biochemical and genetic studies of aging and dementia in people with Down syndrome. Research in this field soon took precedence for her, and in 1989 she was invited to join the Department of Biomedical Services and Research at Surrey Place Centre, under the direction of Joseph M. Berg, eminent clinical geneticist and psychiatrist.

Maire's knowledge and expertise in the field of intellectual and developmental disabilities continued to expand as the result of her research; her role as Chair of the research ethics board at Surrey Place Centre; and her extensive professional activities in the intellectual disabilities field, which include cofounding the Research Special Interest Group of the Ontario Association on Developmental Disabilities and the Fragile X Research Foundation of Canada, being Chair of the Publication Committee of the Ontario Association on Developmental Disabilities, and being a member of the Chief Editorial Committee of the Journal on Developmental Disabilities. A dedicated teacher, Maire developed a graduate course entitled Neuroscience of the Developmental Disabilities, providing her with the inspiration and background material to produce Developmental Disabilities in Ontario (co-edited with Ivan Brown).

Author of more than 250 published papers, book chapters, and presentations and reviewer of publications and grants for numerous scientific journals and granting agencies, Maire is internationally known for her work on risk factors in serious human disorders and diseases and as an exemplary mentor of students at all levels. In 2004, in recognition for her lifetime contributions to the field of intellectual and developmental disabilities, she received the Research Excellence Award of the Ontario Association on Developmental Disabilities. The asteroid mairepercy is named in honor of her scientific and research contributions.

Maire currently is involved in collaborative studies of vitamin E in older persons with Down syndrome; in collaborative studies of the roles of iron, aluminum, and B vitamins in dementia; and in the development of screening tools to identify support needs of people with intellectual and developmental disabilities. She shares her home with her husband John (Professor of Astronomy) and two cats and is the mother of Carol (Professor of English).

Karrie A. Shogren, Ph.D. is an Associate Professor in the Department of Special Education at University of Kansas.

Read an Excerpt

http://archive.brookespublishing.com/documents/changing-perspectives-on-id-and-dd.pdf

Table of Contents

About the Editors
Contributors
Introduction
Acknowledgments

I Intellectual and Developmental Disabilities in Today's Context

1. What Is Meant by the Terms Intellectual Disability and Developmental Disabilities?
   Ivan Brown, Michael L. Wehmeyer, and Karrie A. Shogren
2. Historical Overview of Intellectual and Developmental Disabilities
   Ivan Brown, John P. Radford, and Michael L. Wehmeyer
3. Changing Perspectives on Intellectual and Developmental Disabilities
   Michael Bach
4. Trends and Issues in Intellectual and Developmental Disabilities
   Trevor R. Parmenter and James R. Thompson
5. International Human Rights and Intellectual Disability
   Paula Campos Pinto, Marcia H. Rioux, and Bengt Lindqvist
6. Advocacy and Legal Considerations to Ensure Civil Rights
   Peter Blanck, Tina Campanella, and Jonathan G. Martinis
7. Self-Advocacy
   Karrie A. Shogren
8. Making Services More Effective Through Research and Evaluation: An Introductory Guide
   Barry J. Isaacs

II Human Development

9. Introduction to Early Development: A Multidisciplinary Perspective
   Maire Percy and Chet D. Johnson
10. Introduction to Genetics, Genomics, Epigenetics, and Intellectual and Developmental Disabilities
    Maire Percy, Sheldon Z. Lewkis, Miles D. Thompson, Ivan Brown, Deborah Barbouth, and F. Daniel Armstrong
11. Introduction to the Nervous Systems
    William MacKay and Maire Percy
12. Brain Plasticity
    Jan Scholz and Jason P. Lerch

III Etiology and Conditions

13. Factors Causing or Contributing to Intellectual and Developmental Disabilities
    Maire Percy, Ivan Brown, and Wai Lun Alan Fung
14. Down Syndrome
    Anna J. Esbensen and William E. MacLean, Jr.
15. Fragile X Syndrome
    Cynthia J. Forster-Gibson and Jeanette Jeltje Anne Holden
16. Autism Spectrum Disorder
    Adrienne Perry, Julie Koudys, Glen Dunlap, and Anne Black
17. 22q11.2 Deletion Syndrome
    Nancy J. Butcher, Erik Boot, Joanne C. Y. Loo, Donna McDonald-McGinn, Anne S. Bassett, and Wai Lun Alan Fung
18. Fetal Alcohol Spectrum Disorder Part I: Diagnosis, Neurobehavioral Functions, and Interventions in Children
    Catherine McClain, E. Louise Kodituwakku, and Piyadasa W. Kodituwakku
19. Fetal Alcohol Spectrum Disorder Part II: Challenges in Adulthood
    Valerie K. Temple, Leeping Tao, and Trudy Clifford
20. Cerebral Palsy
    Darcy Fehlings and Carolyn Hunt
21. Other Syndromes and Conditions Associated with Intellectual and Developmental Disabilities
    Maire Percy, Miles D. Thompson, Ivan Brown, Wai Lun Alan Fung, and Others
22. Epilepsy
    W. McIntyre Burnham
23. Introduction to Behavior and Mental Health
    Maire Percy, Wai Lun Alan Fung, Ivan Brown, and Angela Hassiotis

IV Support and Intervention

24. An Introduction to Assessment, Diagnosis, Interventions, and Services
    Ivan Brown and Maire Percy
25. Introduction to Intellectual and Developmental Disability Service Systems and Service Approaches
    Ivan Brown, Diane Galambos, Denise Poston Stahl, and Ann P. Turnbull
26. The Roles, Skills, and Competencies of Direct Support Professionals
    Amy S. Hewitt and Matthew Bogenschutz
27. Responding to Cultural and Linguistic Differences Among People with Intellectual Disability
    Tawara D. Goode, Wendy Alegra Jones, and Joan Christopher
28. Behavioral Intervention
    Rosemary A. Condillac and Daniel Baker
29. Challenging Families, Challenging Service Systems: A Positive Intervention Model
    J. Dale Munro
30. Psychopharmacology in Intellectual and Developmental Disabilities
    Jessica A. Hellings and Kenneth Boss
31. Speech, Language, and Communication Assessments and Interventions
    Nancy Brady and Laura Hahn
32. Augmentative and Alternative Communication
    Cathy Binger and Jennifer Kent-Walsh

V Intellectual and Developmental Disabilities Through the Life Span

33. The First 1,000 Days of Fetal and Infant Development
    Maire Percy, Karolina Machalek, Ivan Brown, Paula E. Pasquali, and Wai Lun Alan Fung
34. Early Intervention for Young Children
    Elaine B. Frankel, Kathryn Underwood, and Peggy Goldstein
35. Maltreatment of Children with Developmental Disabilities
    Ann Fudge Schormans and Dick Sobsey
36. Education for Students with Intellectual and Developmental Disabilities
    Michael L. Wehmeyer, Karrie A. Shogren, and Ivan Brown
37. The Transition from School to Adult Life
    Ivan Brown, Michael L. Wehmeyer, Kristine Weist Webb, and Janice Seabrooks-Blackmore
38. Work and Employment for People with Intellectual and Developmental Disabilities
    Richard G. Luecking and Amy Dwyre D'Agati
39. Lifestyles of Adults with Intellectual and Developmental Disabilities
    Pat Rogan
40. Providing Support that Enhances a Family's Quality of Life
    Heather M. Aldersey, Ann P. Turnbull, and Patricia Minnes
41. Sexuality and People Who Have Intellectual and Developmental Disabilities: From Myth to Emerging Practices
    Dorothy Griffiths, Stephanie Ioannou, and Jordan Hoath
42. Parenting by People with Intellectual Disability
    Marjorie Aunos, Maurice Feldman, Ella Callow, Traci LaLiberte, and Elizabeth Lightfoot
43. Gender Issues in Developmental Disabilities
    Kruti Acharya, Abigail Schindler, and Tamar Heller
44. Aging
    Philip McCallion, Nancy Jokinen, and Matthew P. Janicki

VI Health

45. Ethics of Decision Making and Consent in People with Intellectual and Developmental Disabilities
    John Heng and William F. Sullivan
46. Physical Health
    Tom Cheetham and Shirley McMillan
47. People with Intellectual and Developmental Disabilities and Mental Health Needs
    Jane Summers, Robert Fletcher, and Elspeth Bradley
48. Nutritional Considerations for Children with Intellectual and Developmental Disabilities
    Diana R. Mager
49. Alzheimer's Disease and Dementia: Implications for People with Down Syndrome and Other Intellectual or Developmental Disabilities
    Vee P. Prasher, Matthew P. Janicki, Emoke Jozsvai, Joseph M. Berg, John S. Lovering, Ambreen Rashid, Wai Lun Alan Fung, and Maire Percy

VII The Future

50. Future Trends and Advances in Intellectual and Developmental Disabilities
    Michael L. Wehmeyer and Karrie A. Shogren

Index

Editorial Reviews

This second edition text has revised, updated, and new chapters that provide a comprehensive understanding of the issues, realities, current research, and best practices that affect the lives of people with special needs. Some authors are the same, others have been added to keep this volume as current as possible and provide a multidisciplinary perspective, within rapidly changing research and practice

Susan B Palmer

“The book discusses not only fundamental information about intellectual and other developmental disabilities but also critical topics that are often shrouded in misunderstanding such as cultural/linguistic differences, mental health, and sexuality issues.

James R Patton